Group Description:
Marfan Syndrome and Ehlers Danlos Syndrome are both genetic connective tissue disorders. I have one of these in my family, but the range of illness is so varied that the doctors are not sure which one. Both can be very similar so it really doesn't matter which one we have I guess. Do you or someone that you know have one of these ? If so, join in the conversation and we can support each other through the pain, dislocations, and other problems caused by them.